My Parkinson’s: A Web App

Project Manager: Dr Sarah Page
Assistant Project Manager: Dr Stephanie Wells
Steering Committee: Dr Chris Thomas, Dr Biju Mohamed, Dr Ruth Lewis-Morton, Tracy Williams, Sandra Mahon, Dr Jyothi Adenwalla, Amanda Wall

Cardiff and Vale University Health Board

Woman on swing and man standing


In Parkinson’s, damage to specific brain cells results in varied and complex symptoms, requiring input from a broad team of healthcare professionals. Regular Parkinson’s-specific physical exercise can slow the progression of symptoms. The COVID-19 pandemic ended pre-exisiting group sessions providing education about Parkinson’s, introducing team members and demonstrating appropriate exercises. Many face-to-face appointments were also cancelled. The specialist nurses experienced a large increase in queries, and fewer people received the multidisciplinary care recommended by NICE.

We decided to develop a web application providing information about Parkinson’s and local services, and advice and exercises from different professionals.

Project Aims

Man and woman exercising on yoga mats

My Parkinson’s aims to:


Key Outcomes


Service-users and service-providers in the Parkinson’s team voted for their favourite name from a list of options. People were able to submit their own suggestions too. “My Parkinson’s” was the winner.

Bar chart showing results of survey for naming the Parkinson's app


Parkinson's app content flowchart
Therapist next to car and film crew

Specialist therapists from different disciplines wrote their own content and were filmed demonstrating different exercises and techniques for people with Parkinson’s.

An “Expert by Experience panel” is being formed by local service-users and their families who will contribute written content to My Parkinson’s from their perspective, information about local events, and be available to be involved in further quality improvement projects within the Parkinson’s service.


“Our patients often struggle to remember a lot of the information given to them in clinic, so it would be absolutely brilliant to have something like the app for them to refer to at their convenience and share with their family members. I am certain this will drive up the quality of care and support we can offer our patients”

Parkinson’s Consultant

“My Parkinson’s will act as a toolkit to support daily life with Parkinson’s and to establish self-management routines. It will also make patient advice equitable. Everybody will receive the same information.”

Parkinson’s Specialist Nurse

“It will be so useful to have an easily accessible resource that our patients can use to remind them of their exercises!”


Next Steps

Man and woman on sofa watching tablet

My Parkinson’s is currently with our web developers, but soon a version will be ready for service-users to test and feedback. When finalised, all local service-users will be invited to access My Parkinson’s.

Our Exemplar Experience

Useful contacts, Good advice.